A NATIONAL charity is inviting people with multiple sclerosis in Clydebank to take part in an important survey about what it’s like to live with the neurological condition.
The MS Society’s ‘My MS My Needs’ is the largest survey of people affected by the condition in Scotland and across the UK.
When the charity last ran the survey in 2016, more than 11,000 people responded and its findings have helped MS Society campaigns aimed at improving access to treatments, care and support.
This year, the charity is also launching a survey for friends and family of people living with MS.
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The society says it knows how important treatment, care and support is for people living with MS and those closest to them – and this survey will allow the MS Society to understand the needs of these networks better than ever before.
Morna Simpkins, director of MS Society Scotland, said: “We want to hear from as many people with MS as possible, so we can find out whether they’re getting the treatment, care and support that they need in their area.
“The results will show us where in the country services are working well, as well as where improvements are needed.
“This information will be vital to help us campaign for change and shape what the UK looks like for people affected by MS.”
The last My MS My Needs survey, in 2016, revealed that just over half of people who could benefit from a disease modifying therapy (DMT) were receiving one.
In addition, one in three people weren’t getting proper support with everyday activities like washing, dressing and eating and one in six people receiving disability benefits were struggling financially.
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This year the MS Society hopes to get more vital insights like these from across the UK.
The survey takes around half an hour to complete, and is open until May 31.
You can complete the survey through a secure online link at ukmsregister.org, or request a paper copy from the MS Society.
The accompanying survey for those who support a family member, partner or friend with MS can be completed at tinyurl.com/ms-family-friends
See also mssociety.org.uk or call 0808 800 8000.
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